- PHAssociation - A national organization with a mission of finding a cure for PAH. They have a great message board here and lots more too.
- PHCentral - An independent, all-volunteer staffed site since 1997 dedicated to patient education and emotional support. A great resource for those living with PAH. New news links are added every day!
- PH Neighborhood - An online education resource operated by Priority Healthcare.
(For additional sites, search on "pulmonary hypertension websites" in Google. You'll find a number of informative sites with pages devoted to the subject of PAH.)
- There are two good websites where PAH'ers can share information and connect with the world-wide PAH community. (Hyperlinks for these two sites are listed above.)
- PHAssociation - The PHA message boards are open to anyone with an interest in PAH. It's a great place to post a question. You'll also find live chats here.
- PHCentral - Patients and caregivers may sign up for phfriends, a private email service where you can speak freely. You'll find weekly chats here and medical diaries as well.
Learning more about the disease. - For the newly diagnosed or seasoned patient who wants to learn more about pulmonary hypertension, there are a number of good online resources. Some of the many you will find online are listed below.
Sleep Apnea - Apnea (the cessation of breathing during sleep), can contribute to heart failure and pulmonary arterial hypertension. If you have been diagnosed with sleep apnea, or suspect you may have this disorder, you'll want to know about this wonderful resource:
Lung Disease & Related - PAH can be caused by a number of underlying lung diseases. If you have been diagnosed with a lung disease in addition to PAH, you'll find some great information on the following sites.
|
