California PH Forum - June 25-26 2005 Program Details

Please Note: This copy of last year’s program has been provided to give you an idea of topics we have covered in the past. While some of the topics may be covered again, most will change. We try to offer subject matter we feel is most beneficial to a wide variety of patients, caregivers and medical professionals.

In 2007, we will offer an expanded program spanning three days. Our conference is growing. We expect attendance to be at record levels this year. We hope to see you there.

California PH Forum - June 25-26 2005
Program Details
Friday June 24th
5:30 to 7:30 pm

Registration open - lobby
Attendees visit informally - atrium and bar

Saturday June 25th
8:00 – 9:00 am Registration - Ballroom
8:50 – 9:00 am Welcome - opening remarks by Tracy Salsa
9:00 - 9:50 am

First Talk **
Dr. Ramona Doyle, Stanford Univ. Medical Center
Approved Therapies: Flolan, Tracleer, Remodulin, and Ventavis

10:00 – 10:50 am

Second Talk **
Dr. Shelley Shapiro, USC Medical Center
PAH from a Cardiologist's point of view

10:50 – 11:20 am Morning Break – Refreshments in Hall
11:20 – 12:10 pm

Third Talk **
Dr. Roham Zamanian, Stanford Univ. Medical Center
Clinical Trials, Current Research

12:20 – 12:40 am Our PHA Family, Betty Lou Wojciechowski
1:00 – 2:00 pm Buffet Lunch in the Atrium
2:00 - 3:00 pm

Breakout Sessions #1

  1. Nurses Panel
    • Q&A about emergency situations, daily care
  2. Glenna Traiger, RN, USC Medical Center**
    • Diet and Exercise for PAH'ers
  3. Motivational Speaker - People Living Well Post Transplantation
3:15 – 4:15 pm

Breakout Sessions #2

  1. Allyson Rupp, MSW - Clinical Social Worker
    • Living with PAH - Emotional & Intimacy Issues
  2. Dr. John Faul, Stanford Univ. Medical Center **
    • PAH - Things you wanted to know but were afraid to ask
  3. Kim Bernstein, Director of ACCESS
    • Medicare, Insurance, Social Security, Disability
    • Other Resource
4:15 – 4:45 pm Afternoon Break – Refreshments in Hall
4:45 – 5:45 pm

Breakout Sessions #3

  1. Complimentary Therapies and Alternative Modalities **
    • Georgia Davis, RN, UCSF Medical Center - Healing Touch
    • Francesca McCartney, PHD
      Pres. Acad. of Intuition Medicine, Sausalito, CA.
      “ Meditation is Good Medicine” - Alternative Therapies
  2. Nurses Panel
    • Q&A on Traveling & Other PH Issues
  3. Dr. Charles Hoopes, UCSF Medical Center **
    • UCSF Transplant Team w/ Carrie Shellhammer, Transplant Patient
5:45 – 6:30 pm Greet Fellow Phers in the Hotel Lobby
6:30 – 8:30 pm

Dinner in Ballroom

Q&A with Panel of PAH Specialists

  • Drs Faul and Zamanian, Stanford Univ. Medical Center
  • Nurses w/ Larry Parker, RN, Moderator
Sunday June 26th
9:00 – 10:00 am

Fourth Talk **
Dr. Richard Channick, UCSD Medical Center
New Strategies in the Treatment of PAH

10:00 – 10:30 am Snack Break
10:30 – 11:30 am

Breakout Sessions #4

  1. Support Group – Patients
  2. Support Group - Caregivers and Other Family Members
  3. The Future of Prostacyclin Therapy and Current and Future Advancements in ETRA Therapies (Note - For Medical Professionals Only) **
    • Jay Watson, Pharm.D - United Therapeutics
    • Morris Cheeks MD
      Senior Director, Medical Affairs
      Encysive Pharmaceutical
11:30 am – 12:00 pm Farewell, Final Raffle, Evaluation Sheets
1:00 pm Checkout time for hotel guests

**Indicates CEU Credits for Nurses. Courtesy of UCSF Medical Center. CEU credits are free. One CEU for each qualifying talk.