WEBSITES DEDICATED TO PAH

Great Complete Resources!

• PHCentral - An independent, all-volunteer staffed site since 1997 dedicated to patient education and emotional support. A great resource for those living with PAH. New news links are added every day!
• PHAssociation - A national organization with a mission of finding a cure for PAH. They have a great message board here and lots more too.
• PH Neighborhood - An online education resource operated by Priority Healthcare.
• PHA-UK - For our friends across the ocean.

(For additional sites, search on "pulmonary hypertension websites" in Google. You'll find a number of informative sites with pages devoted to the subject of PAH.)

On-line Support - There are two good websites where PAH'ers can share information and connect with the world-wide PAH community. (Hyperlinks for these two sites are listed above.)

• PHCentral - Patients and caregivers may sign up for phfriends, a private email service where you can speak freely. You'll find weekly chats here and medical diaries as well.
• PHAssociation - The PHA message boards are open to anyone with an interest in PAH. It's a great place to post a question. You'll also find live chats here.

OTHER GOOD RESOURCES YOU MIGHT WANT TO CHECK OUT.

Learning more about the disease. - For the newly diagnosed or seasoned patient who wants to learn more about pulmonary hypertension, there are a number of good online resources. Some of the many you will find online are listed below.

• The National Institute of Health "The Disease and Conditions Index"
• The American Heart Association definition of PAH
• Cleveland Clinic "What you need to know about living with pulmonary hypertension."
• Mayo Clinic - Causes of Pulmonary Hypertension

Related Disorders / Conditions

Sleep Apnea - Apnea (the cessation of breathing during sleep), can contribute to heart failure and pulmonary arterial hypertension. If you have been diagnosed with sleep apnea, or suspect you may have this disorder, you'll want to know about this wonderful resource:

• Sleepnet - A series of message boards and info pertaining to sleep disorders of all kinds.

Lung Disease & Related - PAH can be caused by a number of underlying lung diseases. If you have been diagnosed with a lung disease in addition to PAH, you'll find some great information on the following sites.

• American Lung Association
• Chronic Lung Disease Forum
• Pulmonary Rehabilitation

Heart Disease - Heart irregularities can lead to PAH.

• The American Heart Association

Other

• Scleroderma Foundation
• Scleroderma Research Foundation
• Lupus Foundation of America

Financial / Insurance Issues

• Financial Assistance for Medications.
• A.C.C.E.S.S. - Advocacy for Chronic Conditions. If your insurance says "NO" call the folks at ACCESS. Ph 1-888-700-7010.
• Needy Meds - Patient assistance.

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